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FERRO ORGANIZES A SOLIDARY MARKET IN FAVOUR OF OUR ASSOCIATION

Every year, the company Ferro (Almazora) allocates funds to some solidarity projects, proposed by its workers. This year, thanks to Sonia Deusdad Prades, our cause was chosen. Last Friday, they organized a solidary market we visited with great enthusiasm and whose benefits have been given to our association. We thank Ferro and his workers for the solidarity and support shown towards our cause. Thank you Sonia for thinking of us and showing so much affection towards our little ones. We continue...

19 December, 2016By NewsRead more...

THE BARCELONA HANDBALL STAFF SENDS US SUPPORT

Today we want to thank FC Barcelona's handball team for showing their support to our cause, especially their captain Víctor Tomàs and players Valero Rivera, Raúl Entrerríos and Aitor Ariño for posing with our solidarity t-shirts. It is a pride these prestigious athletes, with these gestures, help to give visibility to our association and its objectives. We thank you very much for this great detail, you champions! Everyday we feel more and more the support and the affection of the...

19 December, 2016By NewsRead more...

THE CEIP LA MARINA SHOWS ITS SOLIDARITY IN THE TRADITIONAL CHRISTMAS MARKET

Yesterday afternoon we received a great welcome in the CEIP La Marina (Pre-school and primary school) in Grao of Castellón. The children showed great affection for Celia, even a group of students bought her a toy she enjoyed the whole afternoon with. Thanks for this nice gift! We thank the AMPA (Students´ Parents Association) for thinking about our cause for this year's solidarity market. We assure you that with events like this we move a step forward in the research....

16 December, 2016By NewsRead more...

THE CEIP LA MARINA (PRE-SCHOOL AND PRIMARY SCHOOL) IN GRAO OF CASTELLÓN ORGANIZES A MARKET IN FAVOUR OF THE MEF2C ASSOCIATION

Today we want to thank the CEIP La Marina in Grao of Castellón, which will organize this afternoon a solidarity market whose benefits will go to our cause. This event, coordinated by the AMPA parents with the support of the Staff, will take place at 17:15 in the pre-school playground and will be open to everybody until 7:00 pm. We are very excited about such a special activity, not only because it is solidary with us and gives us visibility,...

15 December, 2016By NewsRead more...

TRANSPARENCY IN THE SEARCH FOR OUR ONLY GOAL: A TREATMENT FOR MEF2C SYNDROME

As you know, the latest news daily speak about Nadia Nerea´s case, which unfortunately has had several victims. On the one hand, all the benefactors who became sensitive with the shocking story of the little girl and her family. On the other hand, associations of rare diseases such as ours that daily struggle to improve the quality of life of those affected. And of course, the most harmed person is little Nadia, who, unaware of all the problems, could...

14 December, 2016By NewsRead more...

THE MEF2C ASSOCIATION WAS PRESENT LAST SUNDAY IN THE SPORTS ENCOUNTERS CASTELLÓN

We are already back home after an intense and exciting journey, a journey which, as you know, has filled us with optimism. We will keep informing you of new details and news about the medical research. Today we want to tell you that last Sunday, while we were coming back to Spain, the association was present at the Sports Encounters Castellón that took place in the facilities of Chencho. There we had the opportunity to give visibility to our cause...

13 December, 2016By NewsRead more...

DR. STUART LIPTON EXPLAINS IN A VIDEO THE IMPORTANCE OF HIS RESEARCH

Today, after an intense week in San Diego, we set out on our journey home, and we do it with our luggage full of optimism and eager to continue fighting for our children. The next step in the research is the drug's toxicity test, for which $ 500,000 is needed. We are sure to get that quantity by bringing together our forces with those of the other affected families, with your support and with the great interest and fight...

11 December, 2016By NewsRead more...

SURFER MIKE COOTS COMPETES IN ISA WORLDS WITH OUR SOLIDARITY BRACELET

Yesterday we took he opportunity to do some sightseeing around the city, and our surprise was to meet "The World Adaptive Surfing Championship", which is being held in La Jolla (San Diego) from 8 to 11 from December. We had the great pleasure of meeting Mike Coots, the well-known surfer who in 1997 lost a leg due to a shark attack while practising his favourite sport. Thanks to his mental strength and his spirit of achievement, with his orthopedic leg...

9 December, 2016By NewsRead more...

GUILLEM TURNS 4

Today one of our brave little ones turns 4 years old. Many congratulations Guillem! You are an example of fighting and overcoming, and your achievements are greater and greater thanks to these constant efforts. In addition, what characterizes you most is that permanent smile that cheers your family every day and gives them strength to continue rowing. Thank you Guillem for your nobility, your joy and for everything you continuously teach all those around you. Keep up the good work, mate,...

8 December, 2016By NewsRead more...

THE MEF2C ASSOCIATION VISITS DR. STUART LIPTON AT THE LABORATORIES OF THE SCINTILLON INSTITUTE

We have many things to tell you today. As you know, yesterday we had the expected visit with the renowned Dr. Stuart Lipton in his laboratories of the Scintillon Institute of San Diego (USA), where we received a great welcome and we were talking with the doctor and his equipment for more than two hours First, they showed us step by step the experimental process they carry out in each laboratory. We were able to see with our own eyes...

7 December, 2016By NewsRead more...