In this section we will show you the therapies that dalily help these young fighters progress and be a bit more autonomous. Some therapies aim to improve their communication and understanding, others make them progress their motor and physical condition, but all of them are necessary to improve their quality of life day-to-day.
Every step these children take is a very important achievement, no matter how small it is, and makes all people next to them very happy. That´s why we want to share these joys with you in this space by showing their progress. We also believe that they can provide ideas to other parents with children suffering from this disease or others with similar symptoms. On the other hand, we will also be pleased to receive suggestions from other parents or professionals on new therapies that can benefit our children.
We encourage you to monitor the progress of the brave children MEF2C children!
We show you a video of Celia in a hydrotherapy session in Urban Sport Club.
She attends many therapies, and hydrotherapy is one of her favourite. All MEF2C kids love water, and this is very beneficial to them.
The sessions in the pool make them enjoy themselves a lot. They also allow them to increase muscle tone and to gain balance and control of their body. They also help them maintain attention and interact with the monitor.
We have been fortunate to have extraordinary monitors, thanks for helping our children so much.
ALTERNATIVE COMMUNICATION SYSTEM “PECS”
Here we show a video of Celia in one of her therapies in Psicotrade Castellón. You can see her learning the alternative communication system with “PECS” with her speech therapist. Both work hard to make our brave little girl to continue getting achievements and progress. With this therapy we get our children begin in communication.
PECS (Picture Exchange Communication System) consists of teaching a person to give an image of a desired element to a communicative receiver, who must immediately reward this exchange.
Guillem often visits his speech therapist who uses these physio-kinesic ribbons to stimulate his mouth muscles and to correct the tendency of his language to be out of his mouth.
Here we can see Guillem with his physiotherapist, both working on a conveyor belt in order to acquire control of his march. One of the main symptoms experienced by MEF2C children is a noticeable delay in their motor development, so stimulation is very necessary. We are very happy and proud of the progress that Guillem is getting through hard work and perseverance.
In this video you can see Celia in a session of occupational therapy. With this work both her coordination and attention are improved. One of the most significant aspects about these children is that it is rather difficult for them to look at and pay attention to their surroundings. With much effort and with the help of professionals, we are seeing a major change in this respect. It is very exciting to start to feel that our children are looking at us, they know us and want to communicate with us.
As for their motor development, we are happy to see how they are gaining more strength, stability and coordination in their movements, all based on perseverance and effort.